What I Wish I Knew as a Parent of a Premature Baby

Becoming a parent is a life-changing moment, but when your baby arrives prematurely, it can feel like a whirlwind of emotions, uncertainty, and unexpected challenges. I’ve walked this road myself, and if I could go back and offer advice to my younger self, these are the things I wish I had known.

1. It’s Okay to Feel Overwhelmed

When my daughter was born prematurely, I felt like the weight of the world was on my shoulders. Between the NICU machines, medical jargon, and constant worry, it’s no wonder many of us feel overwhelmed. What I wish I’d known then is that it’s okay to feel this way. You’re navigating an extraordinary situation, and those emotions are valid.

2. Take It One Day at a Time

In the NICU, every day can bring a mix of hope and fear. I often found myself looking too far ahead, worrying about the future. If I could go back, I’d remind myself to focus on the small victories: a successful feeding, a steady heartbeat, or even just a peaceful moment with my baby. Those milestones are the building blocks of progress.

3. Ask Questions—Lots of Them

Doctors, nurses, and specialists are there to help, but the medical world can feel overwhelming. I wish I’d known that no question is too small or insignificant. Asking about procedures, medications, or even the beeping sounds of the machines not only helped me understand what was happening but also gave me a sense of control.

4. Trust Your Instincts

As a parent, your instincts are powerful. Even when surrounded by experts, I sometimes felt like my voice didn’t matter. What I’ve learned is that your observations and concerns as a parent are incredibly important. Don’t hesitate to advocate for your baby or ask for a second opinion if something doesn’t feel right.

5. Celebrate the Small Wins

In the chaos of the NICU, it’s easy to overlook the small moments of progress. I wish I’d taken more time to celebrate those tiny victories—like the first time my baby held my finger or when we moved from intensive care to special care. Those moments are worth savouring.

6. You Are Not Alone

One of the hardest parts of having a premature baby is feeling isolated. I wish I’d known about the incredible communities of parents who have been through similar experiences. Support groups, both in-person and online, can be a lifeline, offering empathy and understanding when you need it most.

7. It’s Okay to Ask for Help

Whether it’s leaning on family and friends, talking to a counsellor, or accepting support from charities, asking for help is not a sign of weakness. It’s a sign of strength. I wish I’d realised sooner how much easier things could be when I let others in.

8. Your Baby is Stronger Than You Think

Preemies are tiny warriors. Watching my daughter fight through challenges I could never imagine showed me just how resilient these little ones can be. Trust in their strength, even when it feels like the odds are stacked against them.

9. Be Kind to Yourself

The journey of parenting a premature baby is physically and emotionally draining. I wish I’d given myself more grace during those tough days. Rest when you can, and remember that taking care of yourself is just as important as taking care of your baby.

10. There’s Light at the End of the Tunnel

The NICU journey can feel endless, but it’s just one chapter of your story. I wish I’d known that one day, we’d look back on those early days with gratitude for the strength we discovered as a family.

Call to Action

If you’re a parent of a premature baby, know that you’re not alone. Subscribe to my blog for more insights, resources, and stories that can help guide you on your journey. Together, we can navigate the challenges and celebrate the triumphs of parenting our tiny miracles.

Published by Laura Johnstone

Hi I'm Laura. In 2023 I had a very traumatic pregnancy and in turn had a planned premature baby at 32 weeks (we had been told to expect anything from 23 weeks). With multiple visits to specialist hospitals in Southampton and London we went through a journey. Consequently I am wanting to help others that were in my position as well as talk about different and sometimes difficult parenting issues.

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