If you’re reading this, you may already be in the process of seeking an autism assessment for your child—or you’re wondering where to start. It can feel overwhelming, especially if you’re also navigating school meetings, waiting lists, or your own neurodivergence. I get it—I’ve been there.
The truth is, gathering the right kind of supporting evidence can make a real difference. It gives professionals a clearer picture and can help speed up the process in some areas. But most importantly, it allows your child to be seen for who they are, with all their unique traits and challenges.
So here’s a parent-to-parent guide on what you can gather ahead of an autism assessment, whether through CAMHS, your local community paediatrician, or private services.
1. Start a Behaviour Diary
Keeping a written log (or even audio or video if that’s easier for you) of your child’s behaviours over a few weeks can be really helpful. Look out for things like:
How they react to changes in routine Sensory sensitivities (noisy places, textures, smells) Sleep patterns and struggles Social interactions or difficulties Intense interests or repetitive behaviours Emotional responses and how they regulate (or struggle to)
Keep it honest and simple. No need to over-analyse—just record what you see.
2. Ask Nursery or School for Observations
Teachers, teaching assistants, or SENCOs are often the first to notice when something seems different. Ask them for a written summary or report that includes:
Social behaviour with peers Classroom participation Communication style (verbal or non-verbal) Any behavioural challenges or support needs Progress with emotional regulation
If your child has already had any adjustments or a support plan (like SEN Support or IEP), ask for a copy.
3. Use Standardised Questionnaires
Many assessment services use tools like:
The Social Communication Questionnaire (SCQ) Childhood Autism Spectrum Test (CAST) Strengths and Difficulties Questionnaire (SDQ)
Some professionals will give you these during the process, but you can often find templates online or through parent forums to help prepare yourself.
4. Collect Medical and Developmental History
Note anything from pregnancy, birth, and early milestones. This might include:
Premature birth or birth trauma Delays in crawling, walking, or talking Feeding difficulties or sensory issues from infancy Past diagnoses or referrals (e.g. speech and language therapy, OT, audiology)
This builds a fuller picture of your child’s developmental journey.
5. Gather Family Context and History
Is there a family history of autism, ADHD, or other neurodivergence? Sharing this can be helpful. Many families find traits are inherited, and professionals will consider this context as part of the assessment.
6. Include Videos if Helpful
Sometimes it’s hard to explain certain behaviours in words. A short video clip showing your child stimming, struggling in social situations, or navigating a meltdown can offer powerful insight. Just make sure you have consent if others are involved in the footage.
7. Get Support from Professionals You’re Already Working With
If your child sees a speech therapist, occupational therapist, paediatrician, or mental health practitioner—ask them for a short written summary. These allied professionals’ voices are valued in the process.
8. Be Honest About Your Concerns
Whether you’re writing a parent letter or speaking at appointments, trust your gut. You know your child best. Don’t downplay their struggles just because they might “mask well” at school. Masking is exhausting and unsustainable.
9. Join Support Groups and Forums
It might not be ‘evidence’ in the traditional sense, but being in a space where other parents are going through the same can validate your experiences. It also gives you access to advice, templates, and language to help you advocate confidently.
Final Thoughts
Getting your child assessed for autism is a deeply personal process, and it can feel like a full-time job on top of parenting. But you’re not alone—and the more you can gather ahead of time, the more empowered you’ll feel.
This isn’t about trying to prove anything. It’s about helping your child get the understanding, support, and compassion they deserve.
If this blog helped you, please like, share, or subscribe to stay updated on future posts around parenting, neurodiversity, and navigating the system. You’re part of a village now—and everyone’s welcome here.
References:
National Autistic Society. (2024). https://www.autism.org.uk NHS CAMHS Guidance. (2023). Ambitious About Autism. (2024). https://www.ambitiousaboutautism.org.uk Contact – For Families with Disabled Children. (2024). https://contact.org.uk
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