If you’re living with Ehlers-Danlos Syndrome (EDS), you’ll understand this without needing much explanation. There comes a point where things that used to feel simple suddenly don’t. Opening a jar. Pulling a ring tab. Holding a knife. Even gripping something for a few seconds can lead to pain, instability, or that awful moment where aContinue reading “Living with EDS: The Everyday Aids That Have Genuinely Helped Me Protect My Hands and Wrists”
Tag Archives: #EhlersDanlosSyndrome #HypermobilityEDS #ChronicPain #DIYWithDisabilities #ChronicIllnessLife #InvisibleDisability #MentalHealthMatters #ChronicIllnessAwareness #DisabilityAcceptance #AdaptiveLiving #
When My Body Had Other Ideas: Living with Ehlers-Danlos Syndrome and the Loss of DIY Independence
For as long as I can remember, I’ve loved putting things together. There’s something incredibly satisfying about opening a flat-pack box, laying out all the pieces, and methodically building something from nothing. IKEA furniture, in particular, was my guilty pleasure—I relished the challenge of following the instructions, slotting pieces into place, and standing back toContinue reading “When My Body Had Other Ideas: Living with Ehlers-Danlos Syndrome and the Loss of DIY Independence”
The bad and your parenting journey 