No Surrender: The Story I Forgot to Tell

For years, I’ve shared my experiences as a parent, an advocate, and someone navigating the complexities of life with neurodiversity. I’ve spoken about premature birth, NICU stays, trauma, and the struggles parents face. But somewhere along the way, I forgot to tell you the full story—the one that shaped every part of who I am today.

Recently, as I reflected on my journey, I realised I had never truly sat down and shared it all, from the very beginning. So, in my latest podcast episodes, I finally did. And now, I want to share it here with you.

Born Too Soon: My Own Beginning

I was born at 28 weeks and five days, at a time when neonatal medicine wasn’t what it is today. I had a twin brother, Nicholas, but he didn’t make it. I survived, but survival wasn’t simple. I struggled to catch up, and even as I grew older, I didn’t realise just how much my early arrival had shaped my life.

Back then, there wasn’t the same support for parents who lost a baby. My mum had to grieve Nicholas while still fighting to keep me alive. No one talked about what it meant to lose a twin, to wonder who they would have been, or to feel that deep sense of absence that lingers even when you never got to know them.

A Childhood of Challenges

Growing up, I always felt different. I struggled at school, finding it hard to fit in. I was hard of hearing, dyslexic, and I didn’t learn to read until I was 13. But no one understood why. Back then, neurodiversity wasn’t something that was openly discussed, and instead of support, I often felt like I was failing.

It wasn’t just academic struggles. I always felt like I was trying to catch up in life, both physically and socially. I now know that my premature birth, combined with undiagnosed autism and ADHD, played a huge role in how I experienced the world. But at the time, I just felt lost.

Motherhood and the Past Repeating Itself

When I became pregnant with my daughter, Amelia, I had no idea how much my own story would come rushing back. I knew she would be early, but I wasn’t prepared for the emotional weight of watching my child fight for survival in the NICU—just as I had.

I realised then that my journey had come full circle. The fear, the uncertainty, the exhaustion—it was all so familiar. And yet, for the first time, I wasn’t the baby fighting to survive. I was the parent, watching, waiting, hoping.

And I was determined that Amelia’s story wouldn’t be one of struggle alone. I wanted her to have the support, understanding, and love that I had longed for. I didn’t want her to feel lost or like she had to prove herself just to be enough.

Why I Do What I Do

Looking back now, I see that everything I do—every book I write, every blog, every podcast episode—is rooted in this journey. In the fight to be seen. In the determination to make sure other parents and children don’t feel alone.

I talk about premature birth because I lived it. I talk about neurodiversity because I understand the frustration of not being understood. I talk about trauma because I’ve walked through it. And I talk about survival because it’s what I’ve done my entire life.

I never truly told this story because, in some ways, I think I was still piecing it together myself. But now, I want to make sure you know—if you’re struggling, if you feel unseen, if you’re carrying the weight of your own past while trying to build a better future—you are not alone.

I see you. I hear you. And I am walking this journey with you.

If this story resonates with you, please listen to my podcast episodes where I dive deeper into this journey. And if you haven’t already, subscribe to The Good, The Bad, and Your Parenting Journey—because together, we are stronger.

Listen Now:

🎧 Episode 1

🎧 Episode 2

🎧 Episode 3

If this blog helped you in any way, please share it with someone who might need to hear it. And don’t forget to subscribe for more stories, insights, and support on this journey of parenthood and survival.

Published by Laura Johnstone

Hi I'm Laura. In 2023 I had a very traumatic pregnancy and in turn had a planned premature baby at 32 weeks (we had been told to expect anything from 23 weeks). With multiple visits to specialist hospitals in Southampton and London we went through a journey. Consequently I am wanting to help others that were in my position as well as talk about different and sometimes difficult parenting issues.

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